{"id":33971,"date":"2025-04-08T13:51:52","date_gmt":"2025-04-08T10:51:52","guid":{"rendered":"https:\/\/kilosorunum.com\/habercim\/wp-content\/uploads\/2025\/04\/1-38.jpg"},"modified":"2025-04-08T13:52:22","modified_gmt":"2025-04-08T10:52:22","slug":"1-2484","status":"inherit","type":"attachment","link":"https:\/\/adanaseshaber.com.tr\/habercim\/genel\/kimse-bilemezdi\/attachment\/1-2484\/","title":{"rendered":"Kimse bilemezdi"},"author":2,"comment_status":"open","ping_status":"closed","template":"","meta":[],"description":{"rendered":"

\"\"<\/a><\/p>\n"},"caption":{"rendered":"

Indiana, ABD\u2019de ya\u015fayan 44 ya\u015f\u0131ndaki Libby Huffer nadir g\u00f6r\u00fclen bir rahats\u0131zl\u0131k olan N\u00f6rofibromatozis 1\u2019den muzdarip. N\u00f6rofibromatozis (NF), de\u011fi\u015fik sinirler boyunca t\u00fcm\u00f6rlerin b\u00fcy\u00fcmesine sebep olan ve ek olarak kemik ve deri gibi sinir harici dokular\u0131n geli\u015fimini etkileyen genetik hastal\u0131klar tak\u0131m\u0131d\u0131r. Deride ve deri alt\u0131nda \u00e7oklu kahve lekeleri ve n\u00f6rofibromalar ile karakterizedir. Kemiklerin geni\u015flemesi ve deformasyonu ve omurgan\u0131n e\u011filmesi (skoliyozis) ayr\u0131ca ortaya \u00e7\u0131kabilir. Nadir olarak t\u00fcm\u00f6rler beyin i\u00e7erisine kraniel sinirlerde veya spinal kordda geli\u015febilir. NF\u2019li insanlar\u0131n yakla\u015f\u0131k %50\u2019si \u00f6\u011frenme yetersizliklerine sahiptir. Cildinde hen\u00fcz t\u00fcm\u00f6rlerin \u00e7\u0131kmad\u0131\u011f\u0131 \u00e7ocukluk ve gen\u00e7lik y\u0131llar\u0131nda mutlu, normal bir hayat ya\u015f\u0131yordu. V\u00fccudunda t\u00fcm\u00f6rler ilk kez \u00e7\u0131kt\u0131\u011f\u0131nda, insanlar bula\u015f\u0131c\u0131 oldu\u011funu d\u00fc\u015f\u00fcnd\u00fc\u011f\u00fcnden ad\u0131na ve g\u00f6r\u00fcnt\u00fcs\u00fcne at\u0131fta bulunarak kendisine \u201cKertenkele-Nefes\u201d (Lizard Breath) olarak lakap tak\u0131ld\u0131 ve insanlar taraf\u0131ndan ciddi derecede zorbal\u0131k g\u00f6rd\u00fc. 1993\u2019te k\u0131z\u0131na hamile kalmas\u0131yla Libby\u2019nin hormonlar\u0131 t\u00fcm\u00f6rlerinin daha da artmas\u0131na sebep oldu. S\u0131rt\u0131ndaki t\u00fcm\u00f6rler kronik a\u011fr\u0131ya neden olurken, ayaklar\u0131ndakiler ise s\u00fcrekli ka\u015f\u0131nt\u0131 hissi ya\u015fat\u0131yor. 13 farkl\u0131 ila\u00e7 kullan\u0131yor ve uyku sorunu ya\u015f\u0131yor. Sar\u0131lmak ya da du\u015f almak gibi basit \u015feyler bile can\u0131n\u0131 yakabiliyor.
\nB\u00fct\u00fcn hayat\u0131 boyunca g\u00f6r\u00fcn\u00fc\u015f\u00fc dolay\u0131s\u0131yla zorbal\u0131\u011fa maruz kalm\u0131\u015f. Bundan dolay\u0131 cildinin g\u00f6r\u00fclmemesi ad\u0131na hep uzun kollu k\u0131yafetler ve pantolonlar giymi\u015f son zamanlarda ise daha cesur olmaya ba\u015flam\u0131\u015f.<\/p>\n

Ancak tedavi olarak nas\u0131l g\u00f6r\u00fcnece\u011fi ya da k\u0131yafetleri ile cildini nas\u0131l saklayaca\u011f\u0131n\u0131 d\u00fc\u015f\u00fcnmek zorunda kalmayaca\u011f\u0131 g\u00fcnlerin gelmesini arzu ediyor. Bu hastal\u0131k kendisine b\u00fcy\u00fck annesinden miras diyebiliriz. Hastal\u0131k %50 oran\u0131nda genetik miras yoluyla \u00e7ocuklara ge\u00e7iyor.
\nT\u00fcm\u00f6rlerin yok edilmesi i\u00e7in yap\u0131lan on ba\u015far\u0131s\u0131z ameliyattan sonra, Libby, v\u00fccudundaki n\u00f6rofibrom dokusunun iyile\u015fmesi i\u00e7in elektrik ak\u0131m\u0131 kullanacak \u00f6nc\u00fc bir cerrahi y\u00f6ntemi olan elektrodasikasyon cerrahisi i\u00e7in para toplama giri\u015fiminde bulundu.<\/p>\n

Ameliyat i\u00e7in 23.500 Dolar\u2019a (83000 TL) ihtiyac\u0131 var. Bu ameliyat sayesinde uzun s\u00fcre sonra sa\u011fl\u0131kl\u0131 bir hayat ya\u015famas\u0131 m\u00fcmk\u00fcn olabilir.<\/p>\n

Libby son olarak ekliyor: \u2018Ameliyat olabilirsem hayat\u0131m \u00e7ok de\u011fi\u015fir. Daha y\u00fcksek bir \u00f6z sayg\u0131m olur, \u00e7\u00fcnk\u00fc kendimi \u00e7irkin hissediyorum. Ve ayr\u0131ca daha az fiziksel a\u011fr\u0131m olur. B\u00f6ylece daha normal bir hayat ya\u015fayabilirim.\u2019<\/p>\n

Biz de Libby\u2019e ge\u00e7mi\u015f olsun diyoruz. Umar\u0131z gerekli mebla\u011f\u0131 toplayabilir ve sa\u011fl\u0131\u011f\u0131na kavu\u015fabilir.
\nD\u00fczenli Egzersiz Yap\u0131n. \u2026
\nZihninizi \u00c7al\u0131\u015ft\u0131r\u0131n. \u2026
\n3. Kilonuzu Koruyun. \u2026
\nUyku D\u00fczeni Olu\u015fturun. \u2026
\nAlkol ve Sigara T\u00fcketimine Son Verin. \u2026
\nDengeli Beslenmeye \u00d6zen G\u00f6sterin. \u2026
\n7. Stresten Uzak Durun. \u2026
\n8. Bedeninizi Temiz Tutun.
\nSa\u011fl\u0131kl\u0131 g\u00fcnler dileriz.
\nL\u00fctfen \u00f6nce doktorunuza dan\u0131\u015f\u0131n\u0131z<\/p>\n"},"alt_text":"","media_type":"image","mime_type":"image\/jpeg","media_details":{"width":1200,"height":675,"file":"2025\/04\/1-38.jpg","sizes":{"medium":{"file":"1-38-300x169.jpg","width":300,"height":169,"mime_type":"image\/jpeg","source_url":"https:\/\/adanaseshaber.com.tr\/habercim\/wp-content\/uploads\/2025\/04\/1-38-300x169.jpg"},"large":{"file":"1-38-1024x576.jpg","width":1024,"height":576,"mime_type":"image\/jpeg","source_url":"https:\/\/adanaseshaber.com.tr\/habercim\/wp-content\/uploads\/2025\/04\/1-38-1024x576.jpg"},"thumbnail":{"file":"1-38-150x150.jpg","width":150,"height":150,"mime_type":"image\/jpeg","source_url":"https:\/\/adanaseshaber.com.tr\/habercim\/wp-content\/uploads\/2025\/04\/1-38-150x150.jpg"},"medium_large":{"file":"1-38-768x432.jpg","width":768,"height":432,"mime_type":"image\/jpeg","source_url":"https:\/\/adanaseshaber.com.tr\/habercim\/wp-content\/uploads\/2025\/04\/1-38-768x432.jpg"},"kucukResim":{"file":"1-38-80x50.jpg","width":80,"height":50,"mime_type":"image\/jpeg","source_url":"https:\/\/adanaseshaber.com.tr\/habercim\/wp-content\/uploads\/2025\/04\/1-38-80x50.jpg"},"sliderResim":{"file":"1-38-670x330.jpg","width":670,"height":330,"mime_type":"image\/jpeg","source_url":"https:\/\/adanaseshaber.com.tr\/habercim\/wp-content\/uploads\/2025\/04\/1-38-670x330.jpg"},"resim1":{"file":"1-38-184x140.jpg","width":184,"height":140,"mime_type":"image\/jpeg","source_url":"https:\/\/adanaseshaber.com.tr\/habercim\/wp-content\/uploads\/2025\/04\/1-38-184x140.jpg"},"resim2":{"file":"1-38-216x103.jpg","width":216,"height":103,"mime_type":"image\/jpeg","source_url":"https:\/\/adanaseshaber.com.tr\/habercim\/wp-content\/uploads\/2025\/04\/1-38-216x103.jpg"},"resim3":{"file":"1-38-145x70.jpg","width":145,"height":70,"mime_type":"image\/jpeg","source_url":"https:\/\/adanaseshaber.com.tr\/habercim\/wp-content\/uploads\/2025\/04\/1-38-145x70.jpg"},"sagSlider":{"file":"1-38-300x150.jpg","width":300,"height":150,"mime_type":"image\/jpeg","source_url":"https:\/\/adanaseshaber.com.tr\/habercim\/wp-content\/uploads\/2025\/04\/1-38-300x150.jpg"},"yeniSlider":{"file":"1-38-500x290.jpg","width":500,"height":290,"mime_type":"image\/jpeg","source_url":"https:\/\/adanaseshaber.com.tr\/habercim\/wp-content\/uploads\/2025\/04\/1-38-500x290.jpg"},"full":{"file":"1-38.jpg","width":1200,"height":675,"mime_type":"image\/jpeg","source_url":"https:\/\/adanaseshaber.com.tr\/habercim\/wp-content\/uploads\/2025\/04\/1-38.jpg"}},"image_meta":{"aperture":"0","credit":"","camera":"","caption":"","created_timestamp":"0","copyright":"","focal_length":"0","iso":"0","shutter_speed":"0","title":"","orientation":"0","keywords":[]}},"post":33969,"source_url":"https:\/\/adanaseshaber.com.tr\/habercim\/wp-content\/uploads\/2025\/04\/1-38.jpg","_links":{"self":[{"href":"https:\/\/adanaseshaber.com.tr\/habercim\/wp-json\/wp\/v2\/media\/33971"}],"collection":[{"href":"https:\/\/adanaseshaber.com.tr\/habercim\/wp-json\/wp\/v2\/media"}],"about":[{"href":"https:\/\/adanaseshaber.com.tr\/habercim\/wp-json\/wp\/v2\/types\/attachment"}],"author":[{"embeddable":true,"href":"https:\/\/adanaseshaber.com.tr\/habercim\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/adanaseshaber.com.tr\/habercim\/wp-json\/wp\/v2\/comments?post=33971"}]}}